Jessica's Journal

In memory of our daughter Kaitlynn Marie Wellman April 3, 1991 - August 9, 2004.  Today we remember Kaity and all the children who still suffer from MPS and ML related disorders.  You can learn more about Kaitlynn's life by visiting her journal.  (Top link under "Journals" - Kaity's Archived Journal).

Make a donation to the National MPS Society, Inc by clicking here.

To visit with other families, please join us at MPS/ML Forum.

Allison is my good friend who has MPS I or Hurler Syndrome (the same disorder our daughter Kaity had). She lives in North Dakota and is eight years old. She takes weekly I.V. infusions of enzymes which has helped to greatly improve her life. She is on her 6th year of receiving treatment!! Her Mom helped her make a video in honor of MPS/ML Awareness Day. Please do her the honor of watching her video and remembering all the children who suffer with MPS and ML disorders.